REPARERE

(learning REsources for PAtients and RElatives during Recovery)

Summary

The objective in this project is to give example of how analysis of recovery experiences and information and communication needs expressed by patients and their significant other in recovery from Coronary Artery Bypass Graft (CABG) surgery can be presented and used in development of a web-based learning resource. Findings of common challenges and the developing focus of attention provide direction for information- interaction- and presentation design in a resource focusing on symptom management, self care and independence during the recovery period. The prototype will be used for “proof of concept” considerations.

Aims

The aims of the study is to

use findings of common recovery experiences shared by convalescents or their significant other as well as health care providers to design a web-based prototype that demonstrates changing information- or communication needs during trajectories of recovery
incorporate recommendations for universal access to facilitate use of transient impaired or disabled also
delineate appropriateness and feasibility of web-based information and communication resource for patients and relatives during recovery from CABG:

Concepts

Participatory design, iterative development,
Open Source, CSS, XML document, XML tagging, XSL
Model trajectory as needs for information content and communication resources develop and change.
Activity theory is as a framework to explore activities and contextualize recovery experiences including gaps, tensions and dilemmas as they unfold.

Methods

Participatory design in development of prototype and workshops to improve prototype and delineate appropriateness and feasibility of web-based resources for recovering patients and their families.

Analysis

Empirical evidence is subject to content analysis.

Outcomes

A prototype, REPARERE (learning resources for patients and relatives during recovery) to assist symptom management and promote self-care for enhanced coping., demonstrating universal access features, information content relevant for the user population, communication arena for peer-to-peer support and presentation of information according to trajectory of recovery and individualized according to age, gender, co-morbidities, health related quality of life and universal access requirements.
Suggestions for information-, interaction- and presentation design, and issues related to global dissemination and local use focusing “Just-In-Case” and “Just-In-Time” information, peer-to-peer networks as well as professional practice models, and capability to accommodate flexibility in presentation, device independence and mobility as required or preferred by the user.

Publications

Moen, A. (2004). “Tailored e-health resource– an aid for personal recovery management”. Abstrakt og presentasjon ved TTeC’2004: Citizen Participation in e-Health; challenges for research, technologies and health care organizations. Nasjonalt Senter for Telemedisin, 21-23. juni 2004

Moen A, Nævdal J-EB, Smørdal O. Considerations leading to design of learning resources for patients and relatives during recovery (REPARERE). Paper og presentasjon ved Scandinavian Conference in Health Informatics 2004; Arendal, Norway: Høgskolen i Agder; 2004, 23-25. august

Moen, A. Smørdal, O. Gregory, J (2004): “Designing learning resources for patients and relatives during recovery”. Abstrakt og presentasjon ved Third Nordic Conference on Cultural and Activity Research, København, 3-5. september 2004

Members & partners

Feiringklinikken A/S
Institutt for sykepleievitenskap og helsefag, UiO
Health systemslab, University of Wisconsin-Madison, Madison, WI, USA

Related projects

ICT-supported Information and Communication Services for Patients and Relatives during recovery
Advanced Technologies for Health@Home, University of Wisconsin-Madison

Funding

IT-Funk, Norwegian Research Council, approx 300 000 NOK, 2004